IV. INVENTORY (*=restricted files)

SERIES V. COORDINATED PEDIATRIC CARE/CASE MANAGEMENT

Box 1

Folders 1 - 5

MCH correspondence (1981-1986); Dr. C. Everett Koop correspondence and articles (1986-1990); Dr. Merle McPherson correspondence (1989-1990); journal articles and general information regarding medical care and MCH healthy mothers/healthy children information (1985-1988).

Folders 6 - 8

Case management background and history including correspondence, journal and newspaper articles, and notes (1986-1995).

Folders 9 - 13

Correspondence, brochures, journal articles regarding chronic illness (1985-1987); correspondence, notes, copies of Public Law #94-142 regarding handicapped children (Nov. 1975); literature and copy of Public Law #99-457 regarding handicapped infants and toddlers (Oct. 1986); correspondence, program, agenda for National Education Conference on Chronic Childhood Illnesses held in Houston (Jan. 1986); CCI in the Houston Independent School District (1986).

Box 2

Folders 14 - 18

Pennsylvania Bar Association's "The Rights of Handicapped Children" (1987); Pennsylvania special education brochures (1988); Texas "State Board of Education Rules for Special Education Services" (Aug. 1989); report "Guide to National Data on Maternal and Child Health with Special Emphasis on Financing Services for Chronically III Children" (Feb. 1986); AAP policy on children with health impairments in schools (1990).

Folders 19 - 22

General HMO information (1972-1983); Wisconsin HMO report "Medicaid, HMOs, & Maternal & Child Health" (Aug. 1986); HMO correspondence, booklets, general (1990); Landay Creative Group correspondence regarding coordinated team care videotapes and publicity (1986-1987).

Folders 23 - 27

MCH/SPRANS/RPRC - TDH contracts (1983-1984); grant application, correspondence and supplemental contract for TCH's RPRC (1984); list of MCH/SPRANS funded pediatric rheumatology centers (1984-1985); budgets and budget justifications for MCH RPRCs (1984-1988); SPRANS Region VI proposal (June 1984 - also see Box 5 in this series).

Box 3

Folders 28 - 32

TCH's MCHITDH RPRC contract renewal (July 1984-June 1985);
MCHIP/SPRANS application guidance information (1985-1987); correspondence,
information, TCH's MCHITDH RPRC contract renewal application (1985-1986).

Folders 33 - 43

Michigan's Special Health Care Services SPRANS grant information (1985, 1989); MCH/TDH contract (1986-1987); MCH budgets and funding proposals (19861988); MCH/Dept. Of Health & Human Services correspondence and information (19871989); MCHIP RPRC renewal application for MCJ #483 341 (July 1986-June 1987); K-S MCHIP grant application (July 1986-June 1989); K-S/MCH SPRANS correspondence (1986-1990); TS, "Title V - Maternal and Child Health Services Block Grant" (1990-); MCH grant for "National Resource Center for Childhood Rheumatic Diseases (1991).

Box 4

Folders 44 - 50

Lists of pediatric rheumatology centers in the United States (1987-1988); TS, "July 1987-July 1989 Guidelines for Activities of Earl J. Brewer" regarding MCH; flow charts of MCH administrative structure (1989); MCH project abstracts (1989-1990); NIH/SPRANS myositis protocols (Dec. 1987); MCH project MCJ #485001 application renewal (1987-1988 - also see Series IV, Box 4); MCH application renewal, "Team Care Financing in a Tertiary Subspecialty Pediatric Rheumatology Center TCH" (1988-1989).

Folders 51 - 60

Copies of MCH checks to TCH from CCS (1984-1987); MCH purchase vouchers and receipts (July 1984-June 1989); MCH purchase vouchers, checks payable to Earl J. Brewer (Apr.-Dec. 1987).

Box 5

Folders *61 - 73

Correspondence regarding the following MCH funded Texas RPRCs plus McAllen Outreach Clinic patients' clinical summaries (1984-1985, *Folder 61, restricted) and organization information (1985-1987): Level II Valley Pediatric Coordinated Care Clinic project proposals (1987-1989); UTHSC, Dallas, affiliated Center for Developmentally Disabled Children procedures (1987); Foundation for Craniofacial Deformities, Dallas, brochures and article reprints (1987-1988); UT San Antonio grant application (19871988); UT Medical School, Houston, reports (1987-1989); Brackenridge Children's Hospital, Austin, proposal and reports (1987-1989); Brazos Valley Rehabilitation Center, Bryan, proposal (1988); Scott & White Clinic, Temple, Packard Foundation Proposal, Taffy I Project and MCH grant application (1989); UT Collaborative Model Program, Open Arms, Pediatric AIDS Healthcare Demonstration Project, Dallas-Fort Worth area, grant application (1989).

Folders 74 - 79

Meetings and correspondence with Kaiser Permanente Medical Group (southern CA) pediatricians (1988-1990) including Nov. 30, 1989, presentation (script accompanied by 3-1/2" x 5" color photo of Dr. Brewer, seated, and Ms. Robin Sarvey at podium); MCH grant application "Southern California Kaiser Permanente Pediatric Case Management Program for Children With Special Health Needs" (1990); various MCH grant progress reports (1981-1984); TCH's SPRANS/RPRC third quarterly report (Jan.Mar. 1984) and final progress report (July 1983-June 1984 - also see Box 2 in this series).

Box 6

Folders 80 - 85

MCH SPRANS/RPRC quarterly reports (July 1984-Sept. 1985, July-Dec. 1986) and progress reports (July 1984-Feb. 1987).

Folders 86 - 97

"Evaluation of Community-Based Services for Children with Special Health Care Needs" for MCH (June 1989); July 31, 1989, evaluations for TDH by Peat Marwick, CPAs, of case management projects including Brackenridge Hospital SCC, Austin; Ada Wilson Hospital Project ABC, Corpus Christi; UT Southwest Medical Center, Dallas; Texas Tech School of Medicine, Departments of Orthopedics & Pediatrics, El Paso; UTMB, Department of Pediatrics, Galveston; Texas Cleft Palate/Craniofacial Deformity Team, Houston; Easter Seal Society Rehabilitation Center, McAllen; Parent Case Management Program, San Angelo; Health Teams, Inc., San Antonio; Scott & White Cleft Palate Team, Temple.

Folders 98 - 99

National Health Policy Project coordinated with U. S. Surgeon General's office (1989) and Dr. Brewer's April 20, 1989, letter stating case management concepts and projects to Maxine Toense, MCH (another copy of this letter is in Series IV, Box 4; see Series I, Box 3 regarding consideration of Dr. Brewer for nomination for the position of U. S. Surgeon General in 1989).

Folders 100 - 104

Correspondence, brochures, and reports regarding the University of Iowa's Case Management Task Force for Crippled Children Program (1976-1989).

Box 7

Folders 105 - 109

Correspondence and reports regarding Project SERVE for children with special health needs, Massachusetts (1985-1987); TS, "Chronically Ill Children in America: Background and Recommendations," Vanderbilt Center for Public Policy Studies, Nashville, TN (1983); journal articles and correspondence regarding CCI (1983-1986); journal articles relating to health policy (1985-1989); TS, "Osteogenesis According to Ilizarov Technique in Man" (198?).

Folders 110 - 113

SCC patient evaluation information: IBM-PC Enter & Score Programs for Child Behavior Checklist (Ages 4-16), Version 2.2 including manual and two 5-1/2" diskettes; Achenbach Child Behavior Checklist (1989); papers by Ruth E. K. Stein, M.D., regarding psychometric measurements (1980-1986).

*Folders 114 - 118

Individual patient responses to the Stein questionnaire, "Impact [of Chronic Illness] on Family" and "Child Behavior Checklist - Ages 4-16" (Jan. 1987-Dec. 1988).

Folders 119 - 122

Evaluation and summary of patient responses to the Stein questionnaire; TDH CCS Program Rules & Regulations (Mar. 1983); script for Dr. Brewer's presentation "Regionalization of Pediatric Chronic Illness Care" to the Texas State Senate (Jan. 1985); "Future Directions of CCS in Texas" meeting information and correspondence (1985).

Box 8

Folders 123 - 128

Texas Senate CCS hearing which Dr. Brewer attended (Feb. 1986);

TDH/CCS/case management services correspondence and. reports (1986-1989).

Folders 129 - 131

TDH [Coalition] Advisory Committee correspondence, meetings, notes (19871989); 30 color slides, slide presentation script, correspondence, agenda, and audio tape (1/2 of Side A only) by Dr. John L. Miller, III regarding psychosocial impact of arthritis on Mexican American children and their families at case management meeting (San Antonio, 1988); correspondence, reports, forms regarding Dr. Brewer's meeting with Texas Assoc. Commissioner of Health, Clift Price (July 1989).

Folders 132 - 139

Lists of medical directors for major insurance companies (1987); health care financing publications and correspondence (1987-1989); information and correspondence regarding the K-S's HMO, Maxicare Texas (1984-1988 - also see Series IV, Box 1, and Series VIII, Box 6 for additional Maxicare information); Harris County Hospital District Medicare/Medicaid notices to physicians (1986); correspondence, reports, and articles regarding insurance (1986-1988); correspondence and articles regarding CIGNA insurance and meeting with Drs. Klein & Walter (Feb. 1990); BCBS, Medicare Part B Newsletters (1986-1987).

Box 9

Folders 140 - 148

Brochures, correspondence, reports, notes regarding BCBS insurance (19861988); correspondence and reports regarding meetings between BCBS and Brackenridge Hospital, Austin (1990); TDH Committee on Regionalization correspondence and reports (1986); state and national reports regarding care of the chronically ill child (1986-1987); Texas State CCS, Senate Committee on Health and Human Resources correspondence and reports (1986-1987); Texas Senate Committee on Health and Human Services correspondence, articles, and reports (1986-1988) including "Report on Crippled Children's Services Program" (1987).

Folders 149 - 152

Texas legislature report "Transition Planning in Texas for People with Disabilities" (1989); Texas Coalition for Children with Unmet Health Needs correspondence, newsletters, notes, reports (1989-1990); Texas Network for Medically Fragile and Chronically Ill Children information (1990).

Folders 153 - 158

TDH case management information including outreach clinic job descriptions & guidelines, correspondence, brochures regarding Galveston, El Paso, Port Arthur (ca. 1983-1987); UT Medical School, Houston, case management for children with multiple handicaps (March 1989); BCHC, El Paso, 30-minute video featuring Dr. Brewer (1987); BCHC brochures, general information, forms, correspondence (1989-1990 - also see TDH/CCS/case management services correspondence and. reports (1986-1989).

Box 10

Folders 159 - 162

MCHIP grant application for the Commonwealth of Kentucky (1988); Nebraska Project at Creighton Univ. correspondence and brochures (1987-1988); New Orleans Project at Children's Hospital (Ann Todaro) correspondence and grant application (19871989); CSR, Inc., report, "Evaluation of Community-Based Services for Children With Special Health Care Needs" (1988-1989).

Folders 163 - 166

The Kids on the Block, Inc. - correspondence with founder Barbara Aiello, Rosalind Pop, and others; articles, brochures, promotional materials (1986-1993) plus

a "The Kids on the Block" pin presented to Dr. Brewer, and a 20-minute video with the Kids on the Block puppets, U. S. Surgeon General C. Everett Koop, and Barbara Aiello (Oct. 1988).

Folders 167 - 170

Annual Lloyd Bentsen Award established in 1987 to honor Senator Bentsen's interest and devotion to helping children with special needs and their families by recognizing individuals making outstanding contributions to family-centered, coordinated care for such children. Correspondence, newsletters, presentation scripts, brochures regarding the recipients include: 1987, Florene Poyadue (12 photo negatives from the presentation are in the folder); 1988, Lowell P. Weicker, Jr.; 1989, Betsy Anderson; 1990, Merle McPherson.

Box 11

Folders 171 - 176

Lloyd Bentsen Award continued: 1991, Julianne Beckett (folder includes 9 color slides of the recipient, her family, former recipients Betsy Anderson and Florene Poyadue, and others); 1992, Beverley H. Johnson; 1993, Elizabeth Goodwin (includes 5 minute video tape of Treasury Secretary Lloyd Bentsen presenting the award); 1994 (no file); 1995, Grace Powers Monaco; 1996, Robin Bolduc.

Folders 177 - 188

June 1987 U. S. Surgeon General's Conference in Houston. Includes Dr. Brewer's April 1987 letter of resignation from his practice in order to organize the conference; responses to his letter of resignation; planning and correspondence; budget; stationery & name tags; master team packet and team training packet; City of Houston promotional materials; Westin Galleria correspondence and promotional materials; registration lists, and registration fee invoices.

Box 12

Folders 189 - 196

Surgeon General's Conference continued: conference packet and agenda; track sessions; brochures and reports; typescript of U. S. Surgeon General C. E. Koop's conference address; typescript of Dr. Brewer's "Texas Initiative Paper" with 12 slides from the presentation and handwritten notes; audio cassette tape of Dr. Koop's address and part of Dr. Brewer's address on family centered team care (Folder 194); poster session information; and post-conference requests and reports.

Folders 197 - 206

Family-to-Family Network, Houston: history of the network's development; long-range planning; Expo `89 in Houston; Dec. 1990 certificate and articles of incorporation; office lease and office equipment information; personnel correspondence; applicants for Executive Director and Director.

Box 13

Folders 207 - 220

Family-to-Family Network continued: general and organizational correspondence; promotional and fundraising information; brochures; reports; meeting minutes; parent training materials; "The Medical Home Newsletter" (Folder 216); TDH challenge grant correspondence and reports; "F2F News," Jan.-Mar. 1990, Feb. & May 1997 (Folder 219); Social Security Admininstration information.

Box 14

Folders 221 - 233

Family-to-Family Network continued: United Way application and affiliation; Grant #1056 telephone expenses, check requests, extension, spread sheets, correspondence; Grant #1061 correspondence and budget, check requests; Grant #1074 correspondence and budget (information on Grants #1038, #1055, #1057 is found in Series IV, Box 3, Folders 43-45); DOE grant correspondence, budget, reports; typescript for slide presentation on FTF objectives (Folder 232); and 3-1/2-minute VHS videotape of Jan. 3, 1990, "Scene at Five" on Houston's television Channel 2 regarding FTF including interviews with Lisa Daniels, parent of a seriously handicapped child, with Rosalind Pop, a FTF Parent Pal, and with Dr. Brewer.

Folders 234 - 240

Correspondence regarding other organizations including Association for the Care of Children's Health, Washington, D.C., including newsletters and brochures (1987-1990 - See Series VIII for information on ACCH meetings); National Commission on Children (1989); International Health Professionals in Rheumatology (1990); Peaceable Kingdom, Temple, TX, including organizational meeting (1990-199 1); William Temple Foundation, Galveston, TX (1991); National Father's Network (1993-1994).

Box 15

Folders 241 - 247

Research materials for report "Family-Centered, Community-Based Health Care: A European Perspective" (Dr. Brewer, et al., 1989) including World Health Organization reports; 1988 European trip (see Photograph Collection) itinerary, correspondence, reports, assessments, notes; drafts of "Family-Centered..." report and slide script.

Folders 248 - 256

Report references acquired on the European fact-finding trip: From England, two reports by the Committee on Child Health Services, "A Report of the Policy and Practice Review Group, National Children's Bureau," and correspondence and the book,

Honeylands: Developing a Service for Families with Handicapped Children. From the Netherlands, various agency reports and correspondence, Netherlands Institute of Mental Health information, two 1981 reports by the Bartimeus Foundation, "On the Causes of Blindness in the Mentally Retarded with Special Reference to the Genetic Aspects" and "Ophthalmological Disorders Resulting from Perinatal Damage: A Symposium." From Norway, general health services plus the Frambu Health Center and Oslo's Sanitetsforenings Revmatismesykehus.